Citizen Science in Health and Wellbeing Research in Australia: Public perceptions and future directions

Background This research explored public attitudes and preferences regarding citizen science in the context of health and wellbeing. It examined: (1) the level of interest in this method, (2) attitudes toward different terminologies, (3) perceptions of the costs and benefits of involvement, and (4) the types of health and wellbeing research topics the public would like to engage with. Methods Three complementary methods were used to gather community input: qualitative research (focus groups and online discussion boards), an online survey, and anonymous online submissions. Qualitative research (n = 63) sessions were conducted online (Feb–Mar 2024) and explored awareness of citizen science, perceptions around involvement, and topic interests. The online survey (Mar–Dec 2024) asked participants (n = 1137) open- and closed-ended questions on topics of interest, attitudes towards different citizen science terms, perceived value of participation, and prior experience. An anonymous online submission form (n = 21) allowed the public to propose project ideas. Results Qualitative research revealed low awareness of the term “Citizen Science”, and the term itself was perceived as too formal. After explanation, participants recognised potential benefits of the concept such as enhanced research quality, personal learning, and more community-relevant outcomes, but had concerns around data quality and variability in engagement levels. Interest was highest for topics that were personally relevant and where people felt they could make a positive difference (both personally and within the community). The survey found other terms were rated as clearer and more engaging than “Citizen Science”. Priority topic areas included environmental health, nutrition, specific medical conditions, mental health and wellbeing, ageing, community issues, and gender-specific health. Conclusions These findings highlight the public interest in these methods for public health research. They also give direction as to the importance of clear, inclusive language and personally meaningful topics in designing and promoting participation in health and wellbeing citizen science initiatives. TRIAL REGISTRATION Clinical trial number: not applicable